Families with rare gene mutations face threat to Alzheimer's research network
Updated
Updated · NPR · May 7
Families with rare gene mutations face threat to Alzheimer's research network
7 articles · Updated · NPR · May 7
The network links families whose inherited mutations trigger Alzheimer's in middle age, giving scientists a rare way to study the disease before symptoms appear.
Researchers use the group to track how Alzheimer's develops and to test potential treatments more quickly than in broader patient populations.
Any disruption could slow progress in understanding inherited Alzheimer's and weaken a valuable pathway for developing therapies that may also inform the wider disease.
As research networks face collapse, what becomes of the invaluable data and the families who sacrificed for a cure?
With AI now predicting Alzheimer's, why is the human research network behind this breakthrough facing collapse?
A new case suggests a common protein may prevent Alzheimer's. Is defunding research blinding us to an accessible cure?