Updated
Updated · USA TODAY · Jul 15
APDA Launches 3-Part ParkinSex Kit for Couples With Parkinson's as Intimacy Often Declines
Updated
Updated · USA TODAY · Jul 15

APDA Launches 3-Part ParkinSex Kit for Couples With Parkinson's as Intimacy Often Declines

3 articles · Updated · USA TODAY · Jul 15

Summary

  • APDA has rolled out ParkinSex—a kit with a book, card game and sensory items—to help couples with Parkinson’s maintain sexual intimacy as the disease reshapes relationships.
  • Parkinson’s often brings diminished sexual desire, fatigue, anxiety and movement problems, while shame keeps many patients and partners from raising sex-related struggles even with doctors, APDA neurologist Rebecca Gilbert said.
  • The kit encourages couples to broaden their definition of sex when intercourse becomes difficult or impossible, using touch, massage, sensory play and rituals like baths or candles to stay connected.
  • For one Missouri couple, the husband’s diagnosis at 69 changed travel, routines and sex, but also pushed them toward more deliberate affection—kissing, gratitude and saying “I love you” more often.
  • APDA says preserving intimacy can help sustain quality of life over a long period, especially as Parkinson’s progressively turns many romantic partnerships into relationships that also involve caregiving.

Insights

A 'sex kit' for Parkinson's now exists. Why is intimacy still taboo for other chronic illnesses?
Can a kit truly mend intimacy, or does it risk turning personal connection into a clinical exercise?
As new tools address intimacy, how will they reach rural patients who are often the most isolated?